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Queen of Jeggings

Reading a post from CaffeinatedAutismMom on the SPDNetwork.com called ‘Meltdowns Happen’, brought back memories of just a few lovely Lily freak outs, most of them because she was unable to control her emotional response to sensory overload.  Didn’t realize that until later, but looking back, it’s obvious.

Of course, as an infant, I remember her crying and crying at the slightest noise, or, as a toddler, crying when the trash truck honked its horn, running away from her Daisy Scouts meeting in Kindergarten because it was too chaotic and loud, holding her hands over her ears and shaking during school events in the gymnasium, hating the school bus because it was so loud, getting out of the pool and refusing to participate during swim team tryouts because, again, too loud and chaotic.

We figured out pretty early that Lily was sensitive to noise.  But, it wasn’t until 2nd grade or so that we realized she liked soft clothing.  In 4th grade, she refused to wear jeans anymore and I had to search out soft pants with an adjustable waist.  She had one shirt she loved to wear and I figured out that it was Modal fiber, which IS very soft.  In 5th grade, when I asked her why she always pulled a hoodie up over her head, Lily told me that it blocked the bright overhead lights at school, muffled loud sounds and made her feel good.  Now that she’s in 6th grade, Lily has become the Queen of Jeggings.  They’re perfect for her sensory needs. Soft, skinny, tight and of course, stylish.

Now that she’s 11, Lily’s meltdowns (in public anyway) are few and far between.  Occupational Therapy has helped and so has daily movement.  Lily’s learned coping skills. She’s learned to advocate for herself and she regulates her emotions better now. Sometimes she’ll remove herself from a situation when she realizes it’s making her uncomfortable.  We’re still always on the lookout for triggers though and so are her teachers and the friends and family who know her.  Sometimes just warning her that an event might be loud is enough.  Now, if she does end up in a loud and chaotic situation, her discomfort usually shows up as irritability or agitation.

This topic of sensory sensitivities also made me think of an interview I did with Jeffrey Freed. He’s an educational therapist and the co-author of the book, ‘Right-Brained Children in a Left-Brained World.’  He’s also what you would call Twice Exceptional.  He talks about his sensory issues as an adult and a child.

Return from Outdoor Lab

Photo by Lily

Lily came home from Outdoor Lab yesterday, bubbling with excitement and stories.  She had a great time.  Her only complaint was the food.  She declared it gross and said she couldn’t wait to eat some decent food again.  

Lily said she loved all the classes and wishes she could have school outside all the time.  I’ve always thought that she might thrive at a Waldorf school, which emphasizes experiential learning in an outdoor setting.  Lily is definitely is drawn to the outdoors and I have an adult friend with ADHD who is a scientist and a long-time backpacker and he says being outdoors is calming for him.

At Outdoor Lab, they went on long hikes and visited the small on-site planetarium for science class.  They studied history in the restored buildings of the original homestead.  Instructors got in character, dressed in period costumes and Lily said it was very entertaining.  She said one night for their evening program a mountain man named Bear visited and told them stories. He demonstrated his black-powder rifle and Lily said her teacher warned her that it would be loud, so it was okay.

 

Watercolor by Lily

 She had 3 special elective classes… watercolor painting, photography and duct tape wallet-making.  Yes!… duct tape wallet-making… now that is a life-long skill worth learning.
I love seeing her come home so happy and confident, just like a regular ol’ kiddo.

Duct tape wallet by Lily

A Mom Talks with the Director of Special Education

This is so funny, in a sad, sad way. Must watch!
A Mom Talks with the Director of Special Education

Xbox Kinect as a Sensory Tool?

Because both of my 2E girls have sensory issues, their OT suggests that it would be a good idea for them to do some sort of movement before school in the morning.  The benefits of just a few minutes of activity are supposed to last for hours, helping them to be organized, calm and focused at school.

It’s been hard in the winter just getting them out of the house in the dark and cold, so I thought that the Xbox Kinect might be a good way to tempt them into moving in the mornings.

We purposely never had any kind of gaming device, because we knew that our girls would get hooked.  But when we thought about the sensory benefits and the fact that I could use it to workout in the mornings at home, we decided to buy one.  So far, it’s been a great success.

There seem to be lots of games that require left/right coordination which will be great for Zoolander’s bi-lateral confusion.  Seems to be a good workout for all of us too… and the best part is that Zoolander, at least, has been rushing to get ready for school in the morning so she’ll have free-time to play.  Sweet.

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