Category Archives: Twice Exceptional

A 2E Volcano–The Emotion of Writing

I called home to tell the girls I’d be late because I had haircut appointment after work.  Lily was immediately not happy. When I made a joke about how much she must want to see me, she got mad and launched into some angry explanation about some sentences she had to write and she needed me to help her and now she was never going to get done!

When I suggested that she start without me, she got even more upset.  I mentioned to her that these seem like the ‘volcano’ feelings that Dr. K talks about.


I hadn’t seen Lily this upset about writing in awhile.  Up until this year, she would get angry and frustrated almost every time she had to write something. It was torture for everyone involved.  She couldn’t even start writing a sentence by herself and often I scribed for her, helping prompt her along the way.

Now I know that part of this writing difficulty is caused by her Executive Function deficits in planning and task initiation, which seem to be fairly common in people with ADHD or Dyslexia.

Lily has trouble sequencing her thoughts and getting them down on paper. There’s a huge discrepancy between what goes in her brain and what comes out in written expression, which is, of course, frustrating for her.  Although this article on written expression and Executive Function focuses on the bipolar child, there’s some great info in it for all students who struggle with writing.

This year, in 6th grade, Lily has really improved in this area and usually she is able to work on writing assignments by herself.  When I got home tonight though, she kept trying to put off working on her writing.
 
Finally, when I asked a few more questions, she launched into another tirade about a test that she had to take at school and she had to write sentences for her answers and usually she doesn’t have to write the answers and she had to write sentences to support her answers and she got all the answers right but missed points because she didn’t know how/didn’t have time to write the support sentences.

I asked if her frustration with that writing earlier in the day had anything to do with her frustration with writing tonight and she said she thought that it did.

Next thing I know she’s in the office, in the dark, sitting focused at the computer, typing her science analysis answers in a wacky font.  Probably took her 30 minutes total and then she was perfectly happy, at least until she realized she still had to write down her chapter notes for her Lit Circle.

Then came a mini-rant on how difficult it is to write notes while she’s reading.  I reminded her that the teacher said it can just be a few notes she jots on a Post-It after she reads.  So, after giving me a long, detailed verbal description of her chapter in The Golden Fleece, she scribbled down a few notes, which she then typed on the computer using a giant Greek font and titled with Jason’s name translated into its Greek spelling.

I think a lot of time, when faced with a writing assignment, she is just overwhelmed by a wave of emotion–frustration is what she’s used to–and then it usually it subsides quickly.  Just have to keep working on making her aware and giving her the tools to use self-talk to quiet the volcano.

It’s a Myth! ADHD Kids DO Have the Power to Focus

How does Lily occupy herself while Zoolander is growing mold?  Like many ADHD kids who are deemed ‘inattentive’, Lily can super-duper focus when it’s on a project she’s come up with herself.

Last weekend?  It was crafting a horse bridle from twine and a rubber band, and then, of course, sewing a saddle blanket for the lucky horse.

Photo by Lily
Photo by Lily

This weekend?  

Saturday–Sorting and polishing coins… for hours!

Sunday–Making her own animated movie for her Greek project at school.  These XtraNormal movies are so much fun!  Her movie tells the story of Hades kidnapping Persephone and dragging her to the Underworld to be his wife. Hades happens to be wearing some sort of Viking getup in Lily’s version, which adds a certain timeless appeal to the story.

A 2E Wish List–Gangrene & the Common Cold

Shopping online tonight for Zoolander’s 9th birthday, which is coming up this week.  I know she’s tactile and likes things she can touch and, because she’s very visual and has mild dyslexia, she likes books with pictures.

Here’s Zoolander’s birthday wish list:

*Syringe ballpoint pens
*Astronaut ice cream
*Ant Farm
*Rare Earth magnet balls like Nanospheres, Magnet Balls, Buckyballs, Neocube, Cybercube, Zen Magnets
*Plush microbes-She especially likes Gangrene and the Common Cold.  (Who doesn’t, really?)
www.giantmicrobes.com
Gangrene (Clostridium perfringens)
Common Cold (Rhinovirus)

Who wouldn’t love the cuddly Common Cold?



I definitely plan to order a book that Corinna at birdwannawhistle recommended, a childhood favorite of her science-minded 2E husband, The Elements: A Visual Exploration of Every Known Atom in the Universe.

Last year, Zoolander wanted stuffed peppers and a fruit bouquet for her birthday meal.  She hasn’t decided yet what she wants this year, but hopefully something easier than making stuffed peppers on a school night.


Me and the 2E/ADHD/IEP

The IEP drama isn’t over.  There is still some back and forth with the school via email that makes me think that we’re not completely on the same page.  

Also, I showed Dr. K a copy of the draft IEP and he had some thoughts.  He did notice that, while the school had come up with some appropriate goals for Lily, they had not documented how they planned to help her accomplish those goals.

I asked about that in the meeting.  They told me that they exchange that information with next year’s team, verbally, in the fall.  Dr. K says the specifics need to be written in the document. So, when they send me the next version of the IEP, he’s going to take a closer look at it before I sign it.

I just realized I’m writing this calmly as if I’m not completely frustrated (paranoid, defensive, emotional, furious) with this whole process.  I ranted to Dr. K about the fact that I don’t feel like people understand the nuances of Executive Function issues, especially with a twice exceptional kid, and I don’t have the psychological language to explain it fully.  He told me that I don’t need to frustrate myself by trying to educate them, just continue to try to get what Lily needs. 

He did, though, give me some ideas on how to refute some of the arguments that people make against helping train a child with EF deficits to organize themselves.

*There are a lot of disorganized students in middle school.  Your child’s problem is not unusual, so why does she need extra help?

Answer:  Because most other middle school students will learn those Executive Function skills naturally as they mature, but a child with EF deficits needs explicit training to learn those skills.  If they are not given the help in middle school, they will be unequipped for the organizational demands of high school.

*Your child’s late assignments are not affecting her grades in a big way, so why is her disorganization such a big deal?

Answer:  Grades are not the whole measure of a child’s progress and growth as a student.

*We put the assignments on the board, online and give verbal reminders.  It is your child’s responsibility to keep track of them and turn them in.  There’s nothing more that we can do. Why don’t you (stop hovering and) let your child suffer the natural consequences of disorganization at school?

Answer:  Our goal is to eventually have the student take complete responsibility for keeping schoolwork organized, but when a child has EF deficits, it’s a gradual process.  Natural consequences will not teach this kind of student specific strategies to stay organized, that’s why support needs scaffolding to gradually reduce the structure until the student is able to form their own habits.

One conclusion I’ve come to through this process, I solemnly swear I will never attend another IEP mtg by myself.  There’s too much at stake and I’m not equipped to pull it off.

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